The ongoing battle of Apert's

Many of you know that our 3 year old daughter has a rare genetic syndrome called Apert's. It affects many functions of the body but especially the shape of the skull, a fusing of her fingers, and of her toes. Isabel is our little trooper and a warrior of courage and strength. I believe to date she has had 13 different surgeries. It amazes me how little I think about the fact that she has Apert's. In fact I have to be reminded of it, otherwise Isabel just seems normal to us. Today is one of those days where I am reminded of her struggles. She is in Cincinnati meeting with her surgery team in order to determine when he next major surgery will be. More than likely there will be a surgery for her toes to continue to shape and separate them. There could be a hand surgery soon as well to do the same. However, we are not anticipating a major skull surgery for another year or so.

I remember when she was first born and all the prognoses were that she would not have anything better than normal intelligence. I worried that she wouldn't be able to have a fun filled healthy life. Boy was I wrong...she has beaten all the odds and is doing incredibly well. She lights up a room when she walks into it and brings joy and smiles to everyone's face. She is becoming very independent and doesn't want help doing anything. I regularly see her helping her little sister E-Beth in many ways and it warms my heart.

To be honest with you I do not have much worry or concern about today' meeting. When you have been through what she has already and seen God prevail so many times against the odds...meetings like today just seem normal. I guess that's why it is so important for us to always remember what God has done in our life and in others so that we can have the courage to know what he is going to do for us now. We know and believe that God will always provide and Isabel is our walking living example of God's wonderful powerful provision. I pray today that you gain a greater understanding of how our Lord Jesus Christ who watches over us and cares for us. Blessings, Your Dreaming Pastor